Cerebral Palsy Awareness Month

Sponsored in memory of Dr. Leon Root

might just be a long word you don’t know how to pronounce.

But for millions of people, it’s LIFE.

But if it was youor your loved one that had one of these conditions, you wouldn’t head on with your day because your day would look nothing like it looks right now.

But if it was youor your loved one that had one of these conditions, you wouldn’t head on with your day because your day would look nothing like it looks right now.

A rare disease is not just a string of letters.

A rare condition means:

Seeing your child wasting away … and knowing that with every tick of the clock, their time is running out…

Seeing your child wasting away … and knowing that with every tick of the clock, their time is running out…

Highway of Hope family support holding hands- financial and medical assistance- doctor refferals

Taking your loved one in for yet another brain surgery … the 4th one in a span of three weeks…

Highway of Hope little boy teddy bear- procedure- financial and medical assistance- brain surgery
Highway of Hope child reading braille- financial and medical assistance- medical assistance charity

Losing your eyesight, slowly but surely, knowing exactly what awaits you in just a few months…

Losing your eyesight, slowly but surely, knowing exactly what awaits you in just a few months…

If it was YOUR child or loved one affected, would you want people to visit this page, give a sigh, and … leave?

Or would you be silently screaming, “Time is short, money can mean life, do whatever you can to help us!”

Your donation isn’t measured in dollars.
It’s measured in HOPE.

Here’s what your donation becomes…

Highway of Hope rare disease support- help for rare disease- Mentoring Icon

One-on-One Mentors

Having a rare disease is incredibly, painfully lonely. Your donation allows us to pair newly-diagnosed patients with mentors who understand and care.

Highway of Hope rare disease support- help for rare disease- Doctor Referrals Icon

Doctor Referrals

Because rare conditions are rare, pharmaceuticals don’t want to develop treatments. With your donation, Highway of Hope can help patients access cutting-edge research and clinical trials.

HOH Legislation Support Icon- rare disease clinical trial- expert doctors

Legislation

The rare disease community is often overlooked by lawmakers. With your support, we fight for our patients in Washington so they receive the financial and medical assistance they need.

Highway of Hope rare disease support- rare sickness- Medical Transportation Icon

Transportation

About half of those affected with rare conditions struggle with mobility. Your support allows us to provide free transportation to doctor’s appointments, hospitals, and therapy centers.

“HOH empowers those living with rare conditions to become leaders”

S.D.S., Small Fiber Neuropathy

“HOH creates connections between patients”

Shira Strongin, Rare Disease Patient

“HOH provided support when I needed it most”

Marc Yale, Mucous Membrane Pemphigoid

“HOH helped research the right assistive device for our son with CP”

Barry F., Parent of CP patient

“HOH supports individuals along their journey towards
greater independence and improved quality of life”

Dr Robin Akselrud, OTD, OTR/L, AOTA HCHSIS Leadership and Management Chair

Those with rare diseases are heroes.

They face fear with courage
They face loneliness with empathy
They face hardship with willpower

Don’t leave this page and go on with your life.

Highway of Hope Hero child- financial and medical assistance- medical research donation
Highway of Hope Hero child

They face fear with courage
They face loneliness with empathy
They face hardship with willpower

Don’t leave this page and go on with your life.

Empower these heroes and let them know you care.